Jules is a 6 year old energetic boy, living with his parents in Belgium. He was diagnosed with Legg–Calvé–Perthes disease in 2018. Through this blog we want to share Jules' journey, and his family's determination to find the best possible way to help him. We also aim to shed a spotlight onto such disorders, and how continuous and extensive monitoring with Byteflies Sensor Dots can make a difference for disease progress tracking.
Legg–Calvé–Perthes disease is a hip disorder often seen in children. It causes a disruption of blood flow to the ball part of the hip joint. Because of this lack of blood flow, the bones can die and stop growing.
Although healing over time is possible, hip weakening and deformation of the bone can happen. At an adult age, these issues increase the risk of developing arthritis. Therefore, most of the treatment focuses on preventing permanent deformation and stiffness by reducing hip movement.
Jules got a timely assessment by a physiotherapist, who made clear he should avoid standing on his left leg and put as little weight on his hip as possible. Jules has since then used crutches to try and diminish the possible hip damage while the disease runs its course and the bone heals, which can take years.
In order to objectively measure the impact of Jules's activities on his leg and hip, Byteflies has set up a 24/7 home monitoring system with Sensor Dot technology. The Sensor Dot continuously records movement and impact via the IMU sensor. Since December 2018, Jules has been wearing a Sensor Dot to monitor his left leg while he goes on with his play dates.
As it is a small and discreet device, it does not make school days uncomfortable. However, Jules is more than happy to show and tell about his Sensor Dot and magnetic patch to his friends and classmates. The user-friendliness of the Sensor Dot greatly helps in keeping his life and routine, as well as his family's, as normal as possible.
By continuously tracking how Jules uses his legs with accurate signals and data analysis, we can provide feedback to minimize hip damage, assist in a better recovery, and help to avoid adult bone atrophy. Byteflies will send daily reports to his family so they can directly act on the data from the Sensor Dot.
See below for a testimonial video of brave Jules and his family.